April 1-7 Is National Sucrose Intolerance Week
The first week of April is dedicated to spreading awareness for Sucrose Intolerance, also known as Congenital Sucrase-Isomaltase Deficiency (CSID). It’s possible that you or a family member could be suffering from CSID, but don’t know much about the disease. Please join us in celebrating National Sucrose Intolerance Week, April 1st through April 7th, to bring attention to CSID and help educate those who are on their path to finding a correct diagnosis.
What Is CSID?
CSID is a rare disease that affects the body’s ability to digest sucrose, or table sugar, which is found in many common foods. Those with CSID lack sucrase, an enzyme necessary to digest sucrose, and isomaltase, one of the enzymes that digest starch. Without sucrase and isomaltase, foods that contain sucrose or starch may make their way to the large intestine without being properly digested, causing symptoms.
CSID symptoms may include stomach pain, bloating, gas and watery diarrhea, usually after eating certain foods. Some of your favorite foods may contain sucrose or starches that can trigger these symptoms. Foods that may trigger the symptoms of CSID include common fruits and vegetables such as apples, bananas, beans, corn, grapefruit, mangos, onions, oranges, pineapple, split peas, and sweet potatoes.
Do you suffer from these symptoms? Take the quiz to find out if you should see your doctor to determine if a test for CSID may be appropriate for you.
The Path to a Diagnosis
If you or someone you know is struggling with chronic symptoms of CSID, there are tests that can help in the diagnosis. Here are three testing options to explore with your doctor:
- Disaccharidase Assay: This test requires a special examination ordered by your doctor, usually a specialist called a gastroenterologist. The procedure uses a flexible tube called an endoscope, which allows the doctor to examine your intestines. During the examination, the doctor can obtain tissue samples from the wall of your intestine. The tissue samples are sent to a laboratory where the samples are analyzed to determine the level of activity of the sucrase-isomaltase enzyme. The disaccharidase assay is considered the gold standard for diagnosing CSID.
- Sucrose Breath Test: To take this at-home test, you drink a sugary solution and collect breath samples over a period of time. You then send the breath samples to a laboratory for analysis. Results will be provided to your physician’s office within 24 hours of receiving the breath samples. Only your physician can order this test.
- 4-4-4 Oral Sugar Challenge: This simple test can also be done at home, but it is best to discuss it with your doctor first. If you do this test and you experience symptoms, such as bloating, gas, and/or diarrhea 4 to 8 hours after the test, your doctor may want to do further testing to determine if you have CSID.
Spread the Word During National Sucrose Intolerance Week
From April 1st through April 7th, join us in spreading the word about this disease, its symptoms, and testing options. Be sure to use #SucroseIntoleranceAwareness in your conversations on social media. These social media posts can help get you started. Your posts, tweets, and shares can educate and encourage those who may have CSID to find the path to a correct diagnosis.
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