If Your Daughter has CSID, Here are Ways to Navigate Her First Sleepover

If Your Daughter has CSID, Here are Ways to Navigate Her First Sleepover

Your daughter has recently been diagnosed with Sucrose Intolerance caused by Congenital Sucrase-Isomaltase Deficiency (CSID) and is adjusting to her new lifestyle and diet. While things may seem a little different at first, CSID doesn’t have to derail her social life. As your sweet girl gears up for her first sleepover, keep these tips in mind for a stress-free time for both you and your child.

1. Communicate Openly with the Parents Hosting the Sleepover.

Get on the phone with the family hosting the sleepover to ensure a comfortable situation for everyone. During your conversation, be sure to discuss any of your daughter’s medical needs, dietary restrictions, and symptoms to be aware of such as diarrhea, and abdominal gas and cramping. This is also a good time to discuss access to bathrooms and mention any other concerns you may have.

2. Pack Low-Sucrose Snacks.

Make sure your daughter heads off food issues during her first sleepover party by bringing plenty of low-sucrose snacks. The worst thing is for her to show up to a friend’s house, only to be greeted with packaged chips, sugar-laden soda, and pizza! Instead, help your daughter feel included by packing some diet-friendly snacks like veggies with hummus, cheese, grapes, and water with fresh-squeezed lemon. Be sure to let the hosting parents know you will be sending enough of these low-sucrose snacks to be shared with the other sleep-over guests.

3. Be Available for Support.

As a parent, it’s likely you’re going through a slew of emotions of your own about your daughter’s diagnosis. But it’s important now more than ever to be there to support your child. Make sure your daughter feels comfortable talking to you about any issues going on with her friends at school – some of whom may be at the sleepover – including bullying or feeling embarrassed for being “different.” Also realize that diet slips happen, but rather than reprimanding your daughter, try to empathize and have a conversation about the slip.

4. Empower Your Daughter.

While it’s common for children to feel like they are different from their peers, this is your chance to empower your daughter. Some great ways to do this are to have her pick a special cup for taking her medicine or to let her come up with her own list of all-time-favorite, low-sucrose foods. She can even help make a homemade snack to take to the sleepover, so she feels empowered and in control of the situation while having fun, too.

5. Plan a Fun Activity.

Take the focus away from food and CSID by planning some fun sleepover activities! Planning these activities promotes inclusion, so your daughter feels like a part of the group. Have her pick out a favorite board game, stickers, jewelry-making kit, or another craft to take with her to the sleepover for all to enjoy.

6. Have Your Daughter Host Her Own Sleepover.

If your daughter isn’t quite ready for a night away from home, have her host her own sleepover. This way, you can control the situation –from the food down to the beverages – and promote a comfortable environment. You and your daughter can work together to create a fun sleepover menu including everything bagel dogs, lasagna zucchini boats, and pepperoni pizza cauliflower casserole. The girls will love chocolate crackles for dessert, which your daughter can help make ahead of time. Plan to have plenty of games, activities, or a fun movie picked out for the girls to enjoy.

Hopefully these tips help ease some of your nerves, so both you and your daughter feel more empowered about going to or hosting her first sleepover.



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Sucrose Intolerance May Be More Common Than You Think