My Story Archives - Sucrose Intolerance

Bathroom Horror Stories from People with Food Sensitivities

Friday, September 28th, 2018, My Story

Has eating out at a restaurant or going to a friend’s house become a stressful event? Imagine needing to know where the closest bathroom is at all times. Imagine an uncontrollable urge causing a humiliating accident. One of the many symptoms of congenital sucrase-isomaltase deficiency (CSID) is a severe and urgent need to have a… READ MORE

Sucrose Intolerance Goes to College: Lessons Learned Last Semester

Thursday, September 20th, 2018, My Story

A patient’s story about attending college with a rare disease, CSID. Here are the lessons she learned living with sucrose intolerance at college.

Explaining Sucrose Intolerance to My Child’s Teacher

Friday, September 7th, 2018, My Story

My son Jarrod is in first grade and has sucrose intolerance. I was devastated when I heard about what happened at school yesterday. Upset and withdrawn after school, he finally told me at bedtime that he had diarrhea during recess and had to change clothes in the nurse’s office. The other kids were teasing him,… READ MORE

4 Ways to Navigate a Birthday Party with Sucrose Intolerance

Friday, April 13th, 2018, My Story

If dealing with sucrose intolerance is completely new, you may not know how to politely breach the topic with the party hostess. Here are some ideas for navigating birthday parties, while still maintaining your child’s dietary restrictions.

The Sibling Issue: Emotions That May Arise When a Child in Your Family Has Sucrose Intolerance

Friday, March 16th, 2018, My Story

Siblings of a child diagnosed with Genetic Sucrase-Isomaltase Deficiency (GSID) may experience negative emotions. Here are some of the emotions that may arise and suggestions for ways that parents might tackle them.  

Food Isn’t Making You Fat!

Thursday, January 11th, 2018, My Story

By: Emma Brown Two months ago I threw my bathroom scale out the window. Granted, I live in a one-story house and it landed safely in a shrub, but I still felt a bit better. Unfortunately, my husband wanted to weigh himself after his shower. As I trudged around the back of the house to… READ MORE

My Plans for a Spooky, Sugar-Free Halloween

Friday, October 20th, 2017, My Story

Author: Laura J. Halloween was tricky to manage last year for my daughter, Gabrielle, who has sucrose intolerance. I let her go trick-or-treating with her friends, but like all 9-year-olds, they were only interested in collecting as much candy as they could. Her friends ate so much candy! Not wanting to feel left out, Gabrielle… READ MORE

My Barista Is Making Me Sick

Friday, July 14th, 2017, My Story

By: Maggie Cooper I think that my barista is making me sick. I’m not talking about the holes in his earlobes that are big enough to throw a baseball through, or the fact that he really should put a hair net over his bushy beard. I’m talking about the latte that he has been making… READ MORE

Food Journal and Bristol Stool Form Scale

Friday, May 26th, 2017, My Story

By: Kate Coleman Ever since I can remember, I have loved elephants. My most beloved toy as a child was a stuffed elephant, and my favorite book was “The Story of Babar.” As an adult I have watched every documentary ever made about elephants, and I have read and reread “The Eye of the Elephant”… READ MORE

Life With Sucrose Intolerance

Friday, May 12th, 2017, My Story

As an adult with sucrose intolerance, there are many factors to consider. Life is not as carefree as it once was. For someone who does not have sucrose intolerance, here are things that someone with this disorder has to think about and handle frequently. Planning is a huge part of my life. I have to… READ MORE

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