How to Communicate Effectively with Your Healthcare Provider

Establishing a Positive Working Relationship Is Critical

For many individuals, arriving at a proper diagnosis of Congenital Sucrase-Isomaltase Deficiency (CSID) is often an arduous journey. With varied health issues and complicated symptoms, it may take months or even years to get a correct diagnosis. The period before getting a diagnosis can be very frustrating and disappointing. At times, you may feel that the healthcare providers do not believe you, are not listening to you, or are questioning your symptoms and their severity.

Whatever diagnostic difficulties may have impaired your relationship with your healthcare provider, reaching a correct diagnosis will be a relief to you both. You may begin to experience improved health results as the healthcare provider develops the appropriate protocol for your well-being and long-term health. This relationship between patients, caregivers, and healthcare providers (physicians, nurses, and registered dietitians) is built on trust, respect, and cooperation. Below are some tips to help you communicate more effectively with your healthcare provider.

Do certain foods cause you to experience gas, bloating, and chronic diarrhea?

Trust Your Instincts and Judgment

As a parent or caregiver, you have first-hand knowledge of your child’s medical history, routines, development, strengths, and weaknesses. As a patient, you know when something is working for you and when it is not. It is important to convey this information to your healthcare providers. Your input is an invaluable tool to help properly treat your Sucrose Intolerance. Your healthcare providers are there to answer questions and offer input and suggestions. Don’t be intimidated. Ask as many questions as you need to feel comfortable with your understanding of Sucrose Intolerance. Remember that, in time, you will become a Sucrose Intolerance expert.

Seek out Information

Because Sucrose Intolerance is a rare disorder, there isn’t a wealth of information available. It is vital that as a patient, parent, or caregiver, you study as much information as possible to make the best medical decisions for yourself or your child. In addition to meeting with medical specialists, it is important to seek other sources of information from medical journals, online searches, medical pamphlets, and patient support groups. Be sure to confirm the credibility of this information with your physician. Having an understanding of the terminology associated with Sucrose Intolerance also enables you to discuss the diagnosis and treatment protocol with your healthcare providers.

Maintain a Sucrose Intolerance Medical File

Having one specific area to store medical information helps organize your Sucrose Intolerance data. It can be helpful to keep all your medical information in a three-ring binder or an electronic record, divided into sections that include primary care and medical specialists’ receipts, contact information, diet information, food composition tables, food logs or diaries, medication information, school information, and relevant articles. Be sure to request and file records of any procedures, lab or test results, and pathology reports, as well as physicians’ reports or clinic notes. Make your own notes on diet, medication issues, or any other questions you would like to discuss at your next appointment. Having all this information readily available in one spot helps you stay prepared, organized, and informed on your Sucrose Intolerance.

Ask Your Healthcare Provider for a Written Care Plan

It can be very difficult to concentrate and digest all of the information given during an office visit. Being prepared ahead of time can eliminate many uncertainties. To ensure that you don’t forget something at an appointment, come prepared with written questions or concerns that your healthcare provider can address. Request a written report or care plan to better understand your healthcare professional’s instructions.

Change Healthcare Providers If Necessary

Feeling comfortable with a team of healthcare providers is paramount for individuals with Sucrose Intolerance. If a healthcare provider’s communication style does not work well with your own, it may be time to search for a new physician or registered dietitian who better fits your needs. Working with a healthcare provider with whom you feel comfortable and trust is in your best interest. You may need to search for a team of healthcare providers who are willing to work with you and your child in an environment that makes you feel comfortable. This approach ensures the best outcome for you both.

Sucrose Intolerance May Be More Common Than You Think